Special People Normal World – Premieres this week

Posted under ADD,Cerebral Palsy,Goal Setting,Parenting by metzgerbusiness on Tuesday 5 May 2009 at 10:20 pm

Special People Normal World is wonderful new show that will be premiering on the web this week. The wonderful ladies behind this show are Susan Stevens and Kristi Hogg. Susan is the grandmother of Garrett who is a year younger then Haley my daughter and also has CP. Garett’s family was told that he wouldn’t walk until he was five and then he would only walk with a walker. Garrett’s family and his grandmother, Susan, refused to accept that and he is walking unassisted today.

Susan does all the work behind the camera for the show. Kristi is the face on the camera. She has a daughter Maci who has mitochondrial disease. Maci is now 8 years old and doing well with a treatment that Kristi found.

The treatment that Kristi found is HBOT – Hyperberic Oxygen Therapy. There have not been the typical medical studies done on this treatment because there is no money in it for the companies that sponsor these types of studies. However I have spoken to many parents who have tried the treatment and all of them have had success stories including Kristi. The treatment is used to treat, seizures, CP, mitochondrial disease, and even ADD. Unfortunately since HBOT is not a recognized treatment it is very expensive and not covered by insurance companies. It was this common therapy experience and the success they had that seems to provide the inspiration for Susan and Kristi to create Special People Normal World.

They are covering difficulties related to Autism, CP, Parkinson’s and other neurological disorders. They will be discussing treatments, nutrition, and support. I think this show is a must for anyone who is a care taker of special needs people, friends of a special needs person, knows a special needs person or anyone who just wants to understand more about what a special needs family must do to provide the optimal in care for their children.

Check out the sneak peek now!

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  • Dad

    I know from past experience, that if enough people with a medical problem come across a therapy that consistently shows results of improvement for a condition, and if enough of them, along with their referring and treating doctors, start a writing campaign to Medicare, or private insurance companies for coverage of that therapy, those companies’ medical directors will be forced to consider the merits of the therapy – even if it hasn’t yet appeared in peer-reviewed journals and been proven by experimental studies.

    One or two attestations can be dismissed as anecdotal, but with the weight of many folks with positive experience, coverage can be obtained through enough empirical results, and sometimes, some added political pressure – such as Congressmen/women.

    This is especially relevant for hyperbaric oxygen therapy, which has been gradually added to many treatment regimens for many other conditions, because it has been consistently shown to be effective in treating those condition, even if only as empirical evidence (that is, on a case by case basis – but lots of cases, documented by healthcare professionals).

    Although insurance company and Medicare medical directors may like to use the need for double-blinded scientific studies, with large sample populations, to proove the efficacy of a treatment modality, that requirement is often used as an excuse to dismiss coverage for newer and effective treatments, though costly. Yet, much of modern medicine’s accepted therapeutic regimens are precisely the result of empirical experieince (i.e., trial and error). Don’t let anybody kid you about that one.
    Dad.

  • Dad

    I know from past experience, that if enough people with a medical problem come across a therapy that consistently shows results of improvement for a condition, and if enough of them, along with their referring and treating doctors, start a writing campaign to Medicare, or private insurance companies for coverage of that therapy, those companies’ medical directors will be forced to consider the merits of the therapy – even if it hasn’t yet appeared in peer-reviewed journals and been proven by experimental studies.

    One or two attestations can be dismissed as anecdotal, but with the weight of many folks with positive experience, coverage can be obtained through enough empirical results, and sometimes, some added political pressure – such as Congressmen/women.

    This is especially relevant for hyperbaric oxygen therapy, which has been gradually added to many treatment regimens for many other conditions, because it has been consistently shown to be effective in treating those condition, even if only as empirical evidence (that is, on a case by case basis – but lots of cases, documented by healthcare professionals).

    Although insurance company and Medicare medical directors may like to use the need for double-blinded scientific studies, with large sample populations, to proove the efficacy of a treatment modality, that requirement is often used as an excuse to dismiss coverage for newer and effective treatments, though costly. Yet, much of modern medicine’s accepted therapeutic regimens are precisely the result of empirical experieince (i.e., trial and error). Don’t let anybody kid you about that one.
    Dad.

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