Long week
it’s been a long and exciting week here in St. Louis. It’s hard to believe we’ve been here for a full week and yet last Saturday feels like a life time ago. I really miss Abby and Isaac and can’t wait to see them again tomorrow. Haley is doing awesome but we have a long road ahead. Her back still hurts when we move her but other thN that she generally feels pretty good at this point. She was a real trouper the whole time. another little boy who had the operation the same day as Haley came out of it screaming and crying but Haley mostly slept for the first three days and when she finally came out of the hAze she felt okay.
yesterday we had our first PT (physical therapy for the uninitiated) session and learned how to transfer her to her chair then we had a second session in the afternoon where Haley learned to roll over again. We also went through all the streaches we are susposed to do with her. Today we had two sessions of PT. In the morning they went through the streches with us again having Mel and I demonstrate our knowledge and ask questions. Then we stArted going through the home exercise program. It is quite extensive and is to be performed in addition to the therapy program. In the afternoon Haley got to her hands and knees all by herself. it was awesome. She also did some asissted walking and then played in the ball pit on her hands and knees looking for frog beanbags. Then she wanted to go o. the therapy swing so she crawled over to it. My daughter has increadible determination and I’m proud of her for it.
Today we also took a few trips to the roof top garden here T the hospital. It is absolutly gorgous and delightful to visit. Haley enjoyed it from her wheelchair Nd took more time to look at the different colour flowers than she would have befor the surgery. I don’t know if it was the wheelchair or just the desire to stay out of the hospital room which was making us all clostephobic. Haley also enjoyed the playroom here at th hospital. she played in the kitchen, played karyoke and painted. Overall it was a pretty fun day even if there was de pain to accompany it. well write more soon and post some pics and video when I’m on something other than an iPhone.
